Random Conversation

had to cancel some appointments i had to go on the weekend, because i was not feeling good, and i thought i will be better at home....
how wrong i was, was busy all day ..it will had been better to go to my appointments and let everyone deal with their stuff at home

anyways nothing new just another bad weekend for me

hope you have a better weekend

 

Feel better soon Nyx.

 

I still prefer substance over form. And I like living in the 21st century. (And yeah, to the extent that you are making judgments about who someone is - rude, immature, and lazy - based on the means through which they communicate, that DOES make you judgmental.)

 

I'd really like to run away from my body today.

As for the texting thing, to me it's a handy way of communicating things like "Can you stop and get milk on your way here?" or "I'm on my way, see you soon."

I do have one friend in the UK who hates telephones, so we text a lot, but for a serious conversation with someone in your day to day life, I think it's not as effective a means of communication. Things are too easily misunderstood that way.

 

Agreed. Yes, migraine, back spasms, leg spasms. Thursday I had a tremor so bad I couldnt handle a coffee cup. MS is trying to annoy me to death.

And, if I'm being honest with myself, I'm sort of staring down into The Pit today. Getting SSDI on the first application has made me sort of come face to face with the fact that I *am* actually disabled by this damned disease, even if I don't look it. It's taken away so much that I loved...and since the future is utterly unpredictable, it's scary too. I think having the government recognize the disability has been an unpleasant thing for me to face.

 

Pixie, hope you feel better. I hope you get to experience a long remission from this debilitating disease. Positive energy toward you lady.

 

Thanks, Tam, it's much appreciated. Some days, this MonSter is scary.

 

Thanks, TDR. I appreciate it.

 

Tree I hope you feel better. I left you a message.

 

Thanks, Jordan. Gotten and understood.

 

My friends are wearing me out. We have tried to get together two times this weekend, three of us. In between all of my other stuff I am trying.

They both have called and texted me a bazillion times today. I have wasted hours. With all of my friends I seem to all be the go between or the planner person. If I don't then things fizzle.........but it drives me nutz :-|

 

Thought about you the other day when I heard this was coming up and watched it for you.

While it showed progress for some, it seems a lot to go through..but the shoe tying comparison was evident. Anyway, take what you will from it, even if its nothing...:smt001

http://abclocal.go.com/wpvi/story?section=news/health&id=8261767


(ps: readers also comment below it and its interesting what they say)

 

Thanks, Kunoichi! This is called CCSVI, and it is very controversial. Some of the patients who have had it have regressed. I'm taking a wait and see attitude, since it also can have complications up to and including death. Some folks swear by it however, so who knows? It can be hard to judge with MS especially if it's relapsing-remitting, because those people can go years in between relapses sometimes. My doctor wont put a label on what kind of MS I have, but it's pretty clear to me that it's what's known as Secondary Progressive, which means I'm never symptom free.

There was a great article this week that in the UK, they have a Phase II study going where they will take bone marrow from a patient, grow the stem cells from it and inject them back into the patient. It sounds promising, they think it may even reverse some of the damage, but it is limited to 150 people, and it will be 5 years before they have results. They are trying to work internationally so that if after a Phase III and Phase IV study they won't have to start all over again in each country.

 

I'm watching Bill Maher and he brought upi that the Fort Hood shooter was called a Muslim terrorist and that A.B. In Norway has not been called a Christian Terrorist. This is a fantastic discussion!!!!!!!!

 

I agree with you. I know 2 guys who are supposedly trying to get to know me, love to text. I'm like uhh, I'm not really getting to know you by a few words here and there. It's annoying. It's my fault for texting first with people, but eventually you want to take it the phone. I do that so it's convenient.

Welcome back Nyx. Hope today is better for you.

Hi Tree, I'm IB, sorry to hear you're going through that.

That sucks. Hopefully you guys can get together some time.

For many years, I was trying to plan a family reunion, but shit, that's been the hardest task cause something always came up, so I gave up on it.